Minnesota seniors and people with disabilities still battling isolation, despite loosening of COVID-19 restrictions

Lauren Thompson felt a sense of foreboding when she learned last week that Minnesota was rolling back restrictions meant to slow the spread of the novel coronavirus.

For Thompson, 32, who was born with cerebral palsy and is more susceptible to infection, the social-distancing rules that had been in force since early March offered some assurance that her caregivers would not bring the virus into her home.

“In many ways, I feel less safe” since Gov. Tim Walz loosened his stay-home orders, said Thompson, who has been mostly isolated at her parents’ house in Brooklyn Park since the pandemic began. “My life is the same, but the people who are helping me are out and about and socializing, which means my risk of infection goes up.”

The decision by Walz to begin a gradual reopening of the economy -- and to let Minnesotans leave the house more -- has brought little comfort to many of the state’s most vulnerable residents, including older adults and individuals with disabilities. For these groups, life goes on much the same as before; except now, their social safety net has been torn. The extreme isolation that accompanied the pandemic is likely to persist for vulnerable adults, in part because the relaxed rules do not apply to them.

The executive order issued last week gave the green light for many businesses to reopen. At the same time, the order strongly urged “at-risk persons,” including people over age 65 and those with underlying health conditions, to remain at home. “It’s clear from this [executive] order that people with disabilities will have to wait longer to enjoy the same freedoms as everyone else,” said Roberta Opheim, state ombudsman for mental health and developmental disabilities.

The status quo has been challenging for this population.

In March, disability service providers across the state began shuttering day and employment centers in response to the pandemic, leaving thousands of people with physical and developmental disabilities in the lurch. Even with emergency measures, these day centers remain closed. As a result, nearly 30,000 Minnesota adults with disabilities have been cut off from a place to go during the day for social interaction, vocational training and other services.

The association that represents day service providers said they have been waiting for guidance from the state on new safety protocols, but it could be several months before larger centers that serve people with more complex needs can reopen. Some may stay closed if the relaxing of social-distancing rules leads to a spike in COVID-19 cases, something public health experts have warned might happen.

“It could be a long time before life returns to normal for the people we support,” said Julie Johnson, president of the Minnesota Organization for Habilitation and Rehabilitation (MOHR), which represents just over 100 day service providers statewide.

Some service providers have been starved of funding for so long that they are permanently closing their doors. Last week, for instance, the Salvation Army announced it was closing a day activity center in Maplewood because of a sustained lack of funding. The decision has left between 30 to 35 seniors with chronic physical and cognitive disabilities without a destination during the day for social interaction, exercise, Bible lessons and other activities.

“With the loss of revenue and the added cost of new program requirements, we just couldn’t find a way to make this program financially feasible in the COVID-19 era,” said Lt. Colonel Lonneal Richardson, commander of the Salvation Army’s Northern Division.

Such closures can upend the lives of family members, who often rely on such centers as a respite from providing round-the-clock care.

Linda Christensen, of East St. Paul, said she enrolled her 84-year-old husband in the Salvation Army’s center last summer after he was diagnosed with Alzheimer’s disease. The center provided a level of “mental and spiritual stimulation” that Christensen said she could not provide at home. Now that it’s closed, Christensen has to keep eyes on him constantly to ensure he doesn’t wander. Fatigue is setting in.

“I feel the gate has closed for us and it’s remained closed,” Christensen said. “The relaxing of [stay-at-home] rules doesn’t change life for us.” She added, “If anything, it may make matters worse. If I get the coronavirus because people let their guard down, then who is going to take care of my husband?”

Isolation remains another major source of concern. Even before the coronavirus arrived in Minnesota, adult foster-care facilities and home care agencies across the state were struggling with a shortage of support staff. Those shortages have worsened, in part because workers have been fearful of being infected in these homes. As a result, many people in group homes have no one to take them out into the community, advocates say.

Since March, the Minnesota Disability Law Center has received a sharp increase in reports from group home residents complaining of extreme isolation, said Dan Stewart, the center’s legal director. In some cases, healthy residents in these homes have been ordered to stay in their rooms, in violation of their civil rights, he said. In one case, a group home resident was prevented from going to work, even though the person had an essential job, Stewart said. And accommodations are often not being made for families to visit.

“Doors are being shut that don’t need to be shut,” Stewart said. “Broadly speaking, we are facing the same age-old questions of how to balance the rights of the many with the rights of the few.”

For now, Thompson just wants to return home. After the pandemic hit, a sudden shortage of caregivers made it impossible for her to stay in her supported apartment in Champlin, so she moved in with her parents. Thompson sleeps in the same room she did as a child, surrounded by the stuffed animals and coloring books that she enjoyed as a three-year-old.

“I never thought I’d be back here,” Thompson said of her childhood room. “It’s both comforting and awkward at the same time.”

Chris Serres • 612-673-4308

Twitter: @chrisserres

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